Resources

Bernhardt, Barbara A; Haul, Peter; Weiner, Janet and Weiss, Joan A.

Marfan Syndrome: A Booklet for Teenagers

Braden, Marcia L.

Fragile: Handle With Care – More About Fragile X Syndrome: Adolescents and Adults

2000

Canadian Society for Mucopolysaccharide and Related Diseases (MPS)

Family Resource Book for Lysosomal Storage Disorders

Cox, Janice Hovasi & Doorlag, Denise

Nutrition Care for Infants and Toddlers with Prader-Willi Syndrome

2004

Finucane, Brenda

Fragile X Syndrome: A Handbook for Families and Professionals

2002

Grant Wood Area Education Agency

Building Blocks for Parents

1982

Harris-Schmidt, Gail & Fast, Dale

The Source for Fragile X Syndrome

2004

Heyman, Carly

My Extra Special Brother

2003

Hunter, Kathy

The Rett Syndrome Handbook

2007

Hyman, Julie & Evans, Alice

Angelman Syndrome, A to Z

2000

International Rett Syndrome Association

Rett Syndrome: A Conversation with Families

International Rett Syndrome Association

Silent Angels: The Rett Syndrome Story

2000

International Rett Syndrome Association

Rett Syndrome: A Therapeutic Approach

Langton, Brian S.

A First Step: Understanding Guillain-Barre Syndrome

2002

Lewis, Jackie & Wilson, Debbie

Pathways to Learning in Rett Syndrome

1998

Lindberg, Barbro

Understanding Rett Syndrome: A Practical Guide for Parents, Teachers, and Therapists

1006

Paradis, Laurain

A Very Special Mouse (Marfan Syndrome)

1990

Pyeritz, Reed E. & Gasner, Cheryll

The Marfan Syndrome

1999

Steiger, Charles

My Brother Has Fragile X

1998

Telethon Institute for Child Health Research

Improving Health Outcomes in Rett Syndrome — Nutritional and Digestive Health

2013

The National Organization for Albinism and Hypopigmentation

Raising a Child with Albinism: A Guide to the Early Years

2011

Weber, Jayne Dixon

Children with Fragile X Syndrome

2000

Wharton, Robert H.; Levine, Karen; Fragala, Maria & Patch, Deirdre C.

The Child with Prader-Willi Syndrome: Birth to Three

2004