Resources

Apel, Melanie Ann

Let’s Talk About It: Living with a Parent with Multiple Sclerosis

2001

Cavallo, Pamela

When a Parent Has Multiple Sclerosis: A Teenager’s Guide

1994

Dystonia Medical Research Foundation

Dystonia: A Movement Disorder (video)

2000

Dystonia Medical Research Foundation

Finding Your Way: The Dystonia Guidebook for Teens

2004

Feely, Jessica (ed.) & Fell, Meghan

Dystonia Guidebook for Kids (ages 8 to 12)

2000

Flying Five, The

The Odyssey of the Moving Muscles Ride

2008

Foley, Frederick & Sarnoff, Jane

Taming Stress in Multiple Sclerosis

1996

Groetzinger, Deanna & Brown, Beverley

Multiple Sclerosis: Its Effects on You and Those You Love

2002

Holland, Nancy & Frames, Robin

Understanding Bowel Problems in Multiple Sclerosis

1999

Holland, Nancy & Sarnoff, Jane

Taking Care: A Guide for Well Partners (MS)

1994

Korf, Bruce & Rubenstein, Allan E.

Neurofibromatosis: A Handbook for Patients, Families and Health Care Professionals (2nd ed.)

2005

LaRocca, Nicholas G & King, Marha

Solving Cognitive Problems (MS)

1995

Minden, Sarah L. & Frankel, Debra

Plaintalk: A Booklet About Multiple Sclerosis for Family Members

2000

Mosby, Ian

Why Me? A Guide to Living With Your Child’s Neuromuscular Disorder

2001

Multiple Sclerosis Society of Canada

Frequently Asked Questions About Multiple Sclerosis

2003

Multiple Sclerosis Society of Canada

10 Tips for People Living with MS

2001

Muscular Dystrophy Association

Limb-Girdle Muscular Dystrophy

2005

Muscular Dystrophy Association

Charcot-Marie-Tooth Disease and Dejerine-Sottas Disease

2005

Muscular Dystrophy Association

Dermatomyositis, Polymyositis & Inclusion-Body Myositis

2004

Muscular Dystrophy Association

Duchenne & Becker Muscular Dystrophies

2006

Muscular Dystrophy Association

Friedrich’s Ataxia

2003

Muscular Dystrophy Association

Friedrich’s Ataxia

2003

Muscular Dystrophy Association

Genetic and Neuromuscular Diseases

2003

Muscular Dystrophy Association

Myopathies

2005

Muscular Dystrophy Association

Myotonic Muscular Dystrophy

2005

Muscular Dystrophy Association

Spinal Muscular Atrophy

2003

Muscular Dystrophy Association

Breathe Easy: Respiratory Care in Neuromuscular Disorders

2006

Muscular Dystrophy Association

Metabolic Diseases of Muscle

2003

Muscular Dystrophy Association

Learning to Live with Neuromuscular Disease: A Message for Parents

2006

Muscular Dystrophy Association

Myasthenia Gravis, Lambert-Eaton Myasthenic Syndrome & Congenital Myasthenic Syndrome

2006

Muscular Dystrophy Association

Journey of Love: A Parent’s Guide to Duchenne Muscular Dystrophy

1998

Muscular Dystrophy Association of Canada

Duchenne Muscular Dystrophy (video)

Muscular Dystrophy Association of Canada

Friedrich’s Ataxia (video)

Muscular Dystrophy Association of Canada

Hereditary Motor and Sensory Neuropathies (video)

Muscular Dystrophy Association of Canada

Myotonic Dystrophy (video)

Muscular Dystrophy Association of Canada

Spinal Muscular Atrophy (video)

O’Connor, Paul

Multiple Sclerosis: The Facts You Need

2002

Parent Project Muscular Dystrophy

Laura’s Choice: Reproductive Options for Carriers of Duchenne Muscular Dystrophy (DVD)

Parent Project Muscular Dystrophy

Giving a Face to Duchenne Muscular Dystrophy: Understanding the Disease: Guidelines for Care and Management (DVD)

2003

Parent Project Muscular Dystrophy

The Diagnosis and Management of Duchenne Muscular Dystrophy: A Guide for Families

Parent Project Muscular Dystrophy

Education Matters: A Teacher’s Guide to Duchene Muscular Dystrophy (second edition)

2010

Parent Project Muscular Dystrophy

An Introduction to Education Matters: For Parents (second edition)

2010

Parent Project Muscular Dystrophy

Karen’s Journey: Essential First Steps in the Care of a Young Boy with Duchenne Muscular Dystrophy

Ross, Karen K.

Holding the Hope: A Parent’s Guide to Living With Dystonia

1996

Sanford, Mary Eve & Petajan, Jack

Multiple Sclerosis and Your Emotions

1989

Siegel, Irwin M & Casey, Patricia

101 Hints to “Help-with-Ease” for Patients with Neuromuscular Disease

2005

Siegel, Irwin M.

Muscular Dystrophy in Children: A Guide for Families

1999

Siegel, Irwin M.

Hey! I’m Here Too!

1989

Smith, Eugene

Dystonia: The Disease That Distorts

1996

Thompson, Charlotte E.

Raising a Child With a Neuromuscular Disorder

1999

Wankling, Erla & Abbott, Doreen

Healthy Eating: A Guide for Persons with Multiple Sclerosis

1994

Winheld. Josh

Worth the Ride: My Journey with Duchenne Muscular Dystrophy

2008

Wolfson, Penny

Moonrise: One Family, Genetic Identity and Muscular Dystrophy

2003