The SSCY Research and Evaluation Committee is responsible for reviewing and approving proposals for all research:

  • conducted at SSCY Centre (including recruitment and data collection)
  • involving electronic medical records covered by the SSCY Data Sharing Agreement
  • that is about the SSCY Network

For research conducted at a SSCY Network partner facility that is not SSCY Centre, the Principal Investigator is responsible for obtaining all required approvals. The PI may consult with the SSCY Research and Evaluation Committee for clarification or guidance regarding which approvals are required and how to obtain them.

Please carefully review the SSCY Centre Research Access Guideline before submitting a research project to the SSCY Research and Evaluation Committee. If you have any questions, please contact the SSCY Centre Research Coordinator, Jessie, at jshea@rccinc.ca or (204) 258-6717. Electronic submissions are preferred.

You can download our Guideline and forms here:
SSCY Research and Program Evaluation Access Guideline
SSCY Research Access Application Form
SSCY Research Access Checklist

Overview of SSCY Centre Research Access Application Procedure:

  • Submit a completed SSCY Research Access Application Form, signed signature page from the SSCY Research and Program Evaluation Access Guideline, and a copy of the:
    • Research protocol
    • Participant informed consent form (ICF)
    • Participant assent form
    • Questionnaires or other materials to be given to participants
    • Advertisements to be posted at SSCY Centre or on the SSCY Network website
    • Budget
    • Current Principal Investigator CV
    • REB submission form
    • REB certificate of final approval (you may submit to the SSCY Research and Evaluation Committee before final REB approval is received, but access will not be granted until the REB certificate of final approval is submitted)
    • Health Canada Letter of No Objection, if applicable
    • Clinical Trials Registry number, if applicable
  • The SSCY Research and Evaluation Committee will review all proposals with an emphasis on issues such as merit of the proposal, alignment with SSCY Network’s mission, vision and values, benefits and risks to the participants, research design, credentials of the researchers, presence of ethical approval, impact on the organization’s resources, and involvement of appropriate SSCY Network partners
  • You will be notified in writing regarding the outcome of this review
  • Approved studies will receive a SSCY Research Access Number, which should be included on all future correspondences
  • Submit a copy of all REB correspondence that results from a major protocol or informed consent/assent change or update to the approval status of the project (including the updated protocol, informed consent form or assent form), all Adverse Event reporting forms, all protocol deviation reporting (minor and major), the REB Annual Study Status Reports and Certificates of Annual Approval, and the Final Study Status Report
  • Submit a copy of any report or publication arising from research conducted at the SSCY Centre, with electronic medical records covered by the SSCY Data Sharing Agreement, or about the SSCY Network
  • Notify the SSCY Centre Research Coordinator in writing at least two weeks in advance of any media presentation or publication involving results from research conducted at the SSCY Centre, with electronic medical records covered by the SSCY Data Sharing Agreement or about the SSCY Network
  • PI(s) may be asked to participate in a variety of KT activities at SSCY Centre (including but not limited to: posters, presentations, pamphlets, etc)
  • Researchers will be expected to share results appropriately with a variety of stakeholders, which can include SSCY Centre clients, families or therapists, members of the SSCY Network, policy makers, other researchers and interested community members
  • Information regarding past, ongoing and future research projects may be shared at SSCY Centre and on the SSCY Network website